Narratives of illness in patient blogs: exploring personal voices and medical identity in Indonesian digital health discourse

Authors

  • Muhammad Syaifuddin Politeknik Kesehatan Kemenkes Surakarta Author

DOI:

https://doi.org/10.67490/ijml.v1i1.540

Keywords:

digital discourse, illness narrative, medical authority, patient blogs, positioning theory

Abstract

Background: Digital health communication has expanded rapidly in Indonesia, where patient-authored blogs increasingly function as platforms for narrating illness experiences and negotiating medical identity. Objective: This study aims to examine how narrative structure, medical authority, and identity positioning are constructed and interactionally validated in Indonesian online illness narratives. Method: Using a qualitative corpus-informed design, this research analyzes 42 long-form patient blogs (≈247,000 words) and 812 associated comments through Narrative Analysis, Critical Discourse Analysis, and Positioning Theory. Results: The findings reveal a patterned narrative progression from diagnostic rupture to treatment trajectory and acceptance-oriented closure rather than restitution. Medical authority is not rejected but recontextualized through hybrid discourse combining biomedical terminology, embodied lexicon, and spiritual framing. Identity roles such as Believer, Educator, Fighter, and Family-Embedded Self are strategically mobilized and differentially reinforced through comment engagement. Implication: These findings indicate that digital illness narratives in Indonesia function as participatory spaces where medical authority and patient identities are actively negotiated and socially validated through narrative and interactional dynamics. Novelty: The novelty of this study lies in its integrative methodological triangulation and its demonstration that digital illness discourse in Indonesia constitutes a measurable site of authority negotiation and socially ratified identity construction within a non-Western sociocultural context.

Downloads

Download data is not yet available.

References

[1] C. M. Heilferty, “Toward a theory of online communication in illness: concept analysis of illness blogs.,” Journal of advanced nursing, vol. 65 7, pp. 1539–1547, Jul. 2009, doi: 10.1111/j.1365-2648.2009.04996.x.

[2] L. Hydén, “Illness and narrative,” Sociology, vol. 19, pp. 48–69, Jan. 1997, doi: 10.1111/j.1467-9566.1997.tb00015.x.

[3] R. Spillmann et al., “A window into living with an undiagnosed disease: illness narratives from the Undiagnosed Diseases Network,” Orphanet Journal of Rare Diseases, vol. 12, Apr. 2017, doi: 10.1186/s13023-017-0623-3.

[4] A. Rushforth, E. Ladds, S. Wieringa, S. Taylor, L. Husain, and T. Greenhalgh, “Long Covid − The illness narratives,” Social science & medicine (1982), vol. 286, pp. 114326–114326, Aug. 2021, doi: 10.1016/j.socscimed.2021.114326.

[5] K. Hinson and B. Sword, “Illness Narratives and Facebook: Living Illness Well,” Humanities, May 2019, doi: 10.3390/h8020106.

[6] J. Kobrosli, K. Tapp, and K. Soucie, “Construction of identity in individuals with inflammatory bowel disease across the lifespan,” Psychology & Health, vol. 40, pp. 1102–1122, Jan. 2024, doi: 10.1080/08870446.2023.2299243.

[7] M. Mulyani and S. Syamsinar, “Speech Act Analysis in Nurse-Patient Communication,” AL-MUTSLA, Jun. 2025, doi: 10.46870/jstain.v7i1.1584.

[8] C. Wahyuni, B. Laskarwati, and N. M. A. Qulub, “Informed Consent in Health Services: How are the Patients’ Rights Protected?,” Journal of Law and Legal Reform, vol. 1, pp. 591–604, Jul. 2020, doi: 10.15294/jllr.v1i4.39891.

[9] S. Chen, “A ‘code-switching’ model for healthcare communication,” Healthcare Management Forum, vol. 38, pp. 391–394, Mar. 2025, doi: 10.1177/08404704251327095.

[10] S. Chinn, A. Hasell, and D. Hiaeshutter-Rice, “Mapping Digital Wellness Content: Implications for Health, Science, and Political Communication Research,” JQD, vol. 3, pp. 1–56, May 2023, doi: 10.51685/jqd.2023.009.

[11] I. Valen-Sendstad, “Competing language ideologies of health literacy,” Language, Culture and Society, Sep. 2024, doi: 10.1075/lcs.23003.val.

[12] J. Moreno, “Digital Representations of Illness: Key Issues in Cancer Patient Narratives,” Revista Alicantina de Estudios Ingleses, Jul. 2024, doi: 10.14198/raei.2024.41.10.

[13] K. Julihati and Z. Liu, “Cancer diaries: a study of communication characteristics in cancer patients’ illness narratives on Chinese TikTok,” Frontiers in Communication, Sep. 2025, doi: 10.3389/fcomm.2025.1634011.

[14] N. Fairclough, Media discourse. Edward Arnold London, 1995. [Online]. Available: https://reviewbooku.com/review/norman-fairclough-media-discourse-4951969

[15] S. Epstein and S. Timmermans, “From Medicine to Health: The Proliferation and Diversification of Cultural Authority,” Journal of Health and Social Behavior, vol. 62, pp. 240–254, Sep. 2021, doi: 10.1177/00221465211010468.

[16] M. Van Poucke, “Negotiating the maze of menopause misinformation: A comparative analysis of stance in health influencer versus medical professional discourse,” Atlantic Journal of Communication, vol. 33, pp. 454–476, Jan. 2025, doi: 10.1080/15456870.2025.2453738.

[17] M. Kişi and N. Tüfekci, “Risks and Realities: A Qualitative Examination of Mediatic Medical Discourse from the Physician Perspective,” Anadolu Kültürel Araştırmalar Dergisi, May 2025, doi: 10.63556/ankad.v9i2.260.

[18] M. Kong, Y. Wang, M. Li, and Z. Yao, “Mechanism Assessment of Physician Discourse Strategies and Patient Consultation Behaviors on Online Health Platforms: Mixed Methods Study,” Journal of Medical Internet Research, vol. 27, Mar. 2025, doi: 10.2196/54516.

[19] Y. Li, H. Zou, J. Kwon, and Y. Fang, “Persuading Chronically Ill Patients to Subscribe to Medical Services in Physician-Driven Online Health Communities,” J. Assoc. Inf. Syst., vol. 26, p. 8, Jan. 2025, doi: 10.17705/1jais.00936.

[20] R. Alhedayani and R. Alkhammash, “Crises information dissemination through social media in the UK and Saudi Arabia: A linguistic perspective,” PLOS ONE, vol. 18, May 2023, doi: 10.1371/journal.pone.0284857.

[21] W. N. A. W. Adnan, N. Ibrahim, N. B. Haladin, and W. F. W. B. W. Fakhruddin, “Illness Experience Sharing on Personal Blogs: A Case Study of Malaysian Breast Cancer Survivors,” GEMA Online Journal of Language Studies, vol. 19, pp. 28–47, Nov. 2019, doi: 10.17576/gema-2019-1904-02.

[22] S. Jaworska, “‘Bad’ mums tell the ‘untellable’: Narrative practices and agency in online stories about postnatal depression on Mumsnet,” Discourse, Context & Media, Dec. 2017, doi: 10.1016/j.dcm.2017.11.002.

[23] L. Gu and X. Gao, “Exploring self-presentation posts of people with depression: themes, stigma, and identity construction,” Frontiers in Public Health, vol. 13, Jun. 2025, doi: 10.3389/fpubh.2025.1558197.

[24] C. Wakeham, “Therapy Culture Goes Online: Exploring the Use of Illness Identities on Social Media,” Swansea University, Jan. 2025, doi: 10.23889/suthesis.70843.

[25] J. J. Devasia and L. Ca, “Affirmative Embodied Experience Matters: (Mis)Understanding and Representation in Digital Cancer Narratives,” Literary Oracle, May 2025, doi: 10.70532/lomay2505.

[26] L. Escobedo, L. Cervantes, and E. Havranek, “Barriers in Healthcare for Latinx Patients with Limited English Proficiency—a Narrative Review,” Journal of General Internal Medicine, vol. 38, pp. 1264–1271, Jan. 2023, doi: 10.1007/s11606-022-07995-3.

[27] K. Giaxoglou, “Mobilizing Stories of Illness in Digital Contexts: A Critical Approach to Narrative, Voice, and Visibility,” Poetics Today, Jun. 2022, doi: 10.1215/03335372-9642623.

[28] M. Li et al., “Enhancing named entity recognition with a novel BERT‐BiLSTM‐CRF‐RC joint training model for biomedical materials database,” Materials Genome Engineering Advances, Mar. 2025, doi: 10.1002/mgea.70001.

[29] Y. Wang, X. Yang, and J. Liu, “Navigating Sensitive Conversations: Patient-Centered Communication and Politeness Markers in Chinese Online Medical Consultations,” Healthcare, vol. 12, Dec. 2024, doi: 10.3390/healthcare12232465.

[30] M. C. Younis, “PREDICTION OF PATIENT’S WILLINGNESS FOR TREATMENT OF MENTAL ILLNESS USING MACHINE LEARNING APPROACHES,” Applied Computer Science, vol. 20, no. 2, pp. 175–193, 2024, doi: 10.35784/acs-2024-23.

[31] M. Weidner, “Treatment recommendations as complex activities: A sequential unfolding of acceptance,” Prace Językoznawcze, Sep. 2025, doi: 10.31648/pj.11532.

Downloads

Published

2026-03-31

How to Cite

Muhammad Syaifuddin. (2026). Narratives of illness in patient blogs: exploring personal voices and medical identity in Indonesian digital health discourse. Indonesian Journal of Medical Linguistics, 1(1), 52-66. https://doi.org/10.67490/ijml.v1i1.540

Similar Articles

1-10 of 11

You may also start an advanced similarity search for this article.